Hello buddies, I hope you all have been very well and that you are kicking off summer in the most effective way doable!
So numerous of you have reached out to question how Dominic is performing and while I share a fast photo on Instagram tales at times, I wished to pop in speedily to give you an update.
Because I final wrote, Dominic has finished cycles two and 3 of chemotherapy. Equally created him sick just one day of the cure but with a tweak of the nausea meds, he was sensation improved.
His new favorite in-medical center activity? Tunes therapy! He gets this kind of a big kick out of actively playing the instruments 😁
He is also Pretty into everyday bingo 😍
On the last working day of his 2nd cycle, he experienced the chance to tour the helicopter pad on the clinic roof, which he Loved. The view was awesome and we learned loads of fun specifics (mom enjoys a great discipline excursion, ha)!
Whilst household, he continues to participate in and rather much enjoys everyday living as typical, like loads of outdoors time now that it’s great out!
Amongst rounds two and a few of chemotherapy, we traveled to New York for Dominic to be observed at Memorial Sloan Kettering, wherever they have a team of pediatric oncologists who specialize in neuroblastoma.
He is remaining addressed less than their direction, so significantly obtaining all of his chemotherapy here in Pittsburgh, but we will vacation there for his tumor elimination surgical procedure.
We equally experienced our initially Uber experience, had Shake Shack for the initially time (SO Superior), and Dominic had his very first keep in a resort. A productive excursion, but there is actually no put like house!
Our New Typical
We are receiving pretty applied to the signals of reduced hemoglobin (two days in a row of having extra drink breaks than standard even though taking part in outdoors? We guessed he was heading to need blood when he went to his clinic appointment the next working day and, absolutely sure enough, he did) and minimal platelets (more bruising). He has had a number of transfusions of both of those because commencing this journey, so a great major thank you to any individual who has at any time donated blood, as we are now so a lot more acutely mindful of the significance of this selfless act.
Hemoglobin, platelets, white mobile counts, neutrophils, and ANC numbers are now just common dialogue below.
We’ve all form of settled into our new routine of remedies, excursions to the medical center, managing remedies, line flushing, and so on.
The major hurdle considering the fact that this final cycle of chemotherapy is that we have had to give Dominic each day photographs (vs the 1-time shots following the very first and next rounds) and it is the absolute worst. He has normally hated photographs and he just dreads them, I get anxious, and it is just a total SCENE. The daily shots ended up utilized mainly because of his forthcoming stem mobile harvest, to ensure his counts were being robust (see underneath).
Up coming Actions
This coming week, Dominic will have a stem mobile harvest, wherever they will insert a short-term line to extract stem cells (which will then be stored) should really he require them in any capability all through treatment down the highway. It is our hope that he would not, but they will be there if he does.
The subsequent big stage is in two months when he will have his tumor elimination surgery. Subsequent the surgery, he will have one more spherical of chemotherapy and then a couple of weeks right after that, a battery of assessments and scans to see the place we stand with the disorder.
Make sure you continue on to pray that the most cancers is responding to procedure, that the surgeons are capable to take out the tumor properly and effectively, and that he has a somewhat uncomplicated restoration.
Fun at Home…
A handful of additional images of the children from the latest months ❤️
Wishing you all a pleasurable and secure commence to your summer months! ☀️❤️