Getting to Know Our Social Health Network Members

several mouths with speech bubbles show a sun, scribbled words, and a network of people

The new Social Wellness Network (SHN) delivers room to link with other client leaders. In August, we posted quite a few prompts to the Social Health Community Fb site to act as springboards for being familiar with just one another and forming connections. Local community users experienced numerous insights to share!

How summer warmth affects them

Just one of the queries we asked was about surviving the summer season heat: “We’re getting in no way-ending summer time in this article on the east coastline of the United States. Does warmth have an impact on your health situation?” Overwhelmingly, the response was “yes!”

“Yes, very much, specially for my Lupus. Far too very hot can cause a flare, so I have to continue to be awesome.”

“Yes!!! My mast mobile disease doesn’t allow for excellent temp management. The warmth improves my chronic dehydration and influences the put on time of my ostomy bag.”

“Heat only affects CLL (serious lymphocytic leukemia) clients if they’re now experiencing ‘night sweats,’ which some have. Include on best of that sizzling flashes that some of us also have – and it’s like obtaining a microwave on the inside!”

“I basically do greater in warmer temperature. The humidity is what would make factors challenging for me.”

Their wellness journey in 3 phrases

Another August prompt requested about group members’ wellness journeys: “If you could describe your health journey in 3 terms, what would they be?” A number of text came up continuously.


A lot of respondents chose “empowering” as one particular of their terms. They have identified energy in their wellness journey. Sharing and major from sickness gives them a voice and a new objective.

“Unusual – disabling – empowering!”

“Realizations, hope, empowerment.”

“Empowering, perspective, motivating.”

“Thriving, Empowerment, Hope.”

“Devastated, Prayer, Empowered.”


An additional term a couple of individuals described was “humbling.” Living with chronic health issues strips absent factors that most men and women get for granted. Overall health, uncomplicated motion, and performing each day tasks may perhaps be complicated. But these troubles guide to lessons that people in no way anticipated.

“Unexpected, humbling, strengthening.”

“Definitely humbling.”

“A instructing second.”


The topic of how tough it is to stay with chronic sickness also arose. People today specifically pointed to soreness, worry, and uncertainty.

“Confusing, unpleasant, mysterious.”

In the main, Dull, can be DEPRESSING, in some cases Terrifying.”

“Learning, dwelling, uncertainty.”

Their Connexion 2022 experiences

August was also the thirty day period of the yearly Connexion assembly. This is a time to collect, study from one a further, and hear from Health and fitness Union management. One Facebook prompt asked about experiences at Connexion: “Thank you so a lot for attending day 2 of Connexion!! What has been your preferred session so far? Have you realized anything at all new?”


Several responses shared an appreciation for networking options, particularly the possibility to network with other affected person leaders who are portion of the SHN!

“I’m definitely having fun with assembly other affected person leaders, but session-intelligent I loved studying now about networking.”

“The networking session was incredible. I can’t wait around to meet up with some new buddies tomorrow when we get to network once again.”

“I primarily beloved meeting other individual leaders in the networking session.”

Professional medical gaslighting

Another common session was a person on healthcare gaslighting. Realizing that others are also dismissed and ignored by physicians felt affirming to numerous persons.

“So much . . . certainly today’s gaslighting session.”

“The gaslighting panel was terrific!”

“Today’s clinical gaslighting panel. The dialogue blew my thoughts in a superior way.”

Thank you

We are grateful to all those who engaged with these prompts! Thank you for currently being here and for all the perform you do!

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